Sunday, June 30, 2019
As the summer temperatures visit, my countdown increases. So close to a year without convulsions. *So* close. Thank you, medical science. Perhaps I should have stated, "countup." I hope to never have a seizure again. Ergo, I'm extremely careful with my keto seizure diet, and I'm back in physical therapy. I can legpress more than I've been able to since the brain tumor. Out of My Head finally coming out has been very cathartic, but perhaps a sense of too much completion. I have set in motion for myself a new project, and you will find out more about that soon. Thank you so much for all of your support!
Saturday, October 27, 2018
"I like my life," she thought, as she slathered on face cream and climbed high up into her IKEA bed with her Macbook. "I fought for this." With forty degrees and dropping outside, and four layers of fleece on her bed, she would warm up quickly. Two suitcases' worth of t-shirts from charity events and radio stations occupied the floor at the foot of the bed. In two weeks, they would be sliced and pinned, ready to become another quilt. It was something Dad always said: "You know how to do that. You've been there, done that, got the tshirt." This family story evolved into, "Sounds like you're earning another tshirt," anytime something went haywire. With years of SURVIVOR shirts, radio stations up and down the dial all over the country, and a few extra charitable organizations in between, she had, in fact, earned the tshirt.
Thursday, October 25, 2018
Let's talk about Thankfulness. Ya know, I always tell you I was thankful for life pre-social media, because maybe we were more responsible with our relationships then. Maybe we were wiser about our behavior (okaaay, maybe not, but I had a Promotions Team to look out for me). I'm thankful for you. I'm thankful for those friends who keep coming back. I'm thankful for the fact that you remember the song we yelled out loud as we cruised down the highway. I'm thankful for that time we went for dinner and grabbed one item at each fast food restaurant in town, because let's face it: they all had the best SOMETHING: I'm really thankful for the little things. The walks across town. The calls when you just "feel" like I need them, or when I call you and you say, "How did you know I needed you today?" Because of us.
Monday, April 30, 2018
I felt awesome after my second brain surgery. Awe. Some. I felt so awesome, I was ready to start businesses, nonprofit organizations, organize all of my friends' fundraising needs, and travel the world. I felt indestructible. I was unbreakable. I moved across the country and began new things, so unlimited was my potential. Then the echoes began. For a few years, they were like popcorn. Here. And there. Now it's an all-the-time worry. Again. Now, instead of just one medication, they've added another. And another. Now, since none of those work, I eat special food at certain times of day. I sleep a lot. My surgeon is waiting. There is no specialist in my part of the country. When they can schedule it, I'll get the call. I'll fly back. Scans and wires and hopefully he lets me have coffee. #OutOfMyHead
Tuesday, February 27, 2018
From a long-distant past, comes a tshirt I have to wear again. It's been hanging in my closet all my adult life, because as a woman, I keep important clothes. Every experience we go through, we get a tshirt. I have a tshirt from every Relay For Life, my Team Breakthrough race, every quarter theme at work, every radio station, and a tshirt for each important vacation. This tshirt is the experiential tshirt of seizures. Keeping a long story from getting too long, after my second brain surgery to stop the seizures several years ago, I hadn't had too much of a problem with them. Until a few years ago. Now what? A better doctor, more medicine, nutrition changes? Whatever it takes, I've never backed down from a challenge. That might be why my noggin is in trouble, but let's take one thing at a time. #outofmyhead #ketogenic #braintumor #seizures #seizuredisorder #josieblaine
Wednesday, October 4, 2017
My library is advertising that kids can read to a therapy dog. Although I'm older than fifth-grade, I have interest in doing this. When I began writing Something About Sophia, I often read to Lucky. She enjoyed it. I think most dogs enjoy being spoken to as the people they are. In my ponderances of reading to a therapy dog, my memories of reading to my own dog fell down my cheek and onto my pillow. I'll spend more time with my mom's dog. She bites me. It's an honest relationship. I know she loves me, she just bites me.
Friday, June 23, 2017
It has come to my mind this week that I have more thoughts than I'd care to admit. In other words, I'll try to keep this focused and simplified for those who don't want to read about my personal analysis of Shakespeare's relationship to bullying in the modern school and office. Perhaps I should just stick to writing, but I also have to go to work every day and try to function as an adult in the world, while others seem to be keenly, blissfully unaware of their misfortune toward their fellow society-walkers. "I'll look to like, if looking, liking, move..."