Monday, April 30, 2018

Third Time's the Charm

I felt awesome after my second brain surgery. Awe. Some. I felt so awesome, I was ready to start businesses, nonprofit organizations, organize all of my friends' fundraising needs, and travel the world. I felt indestructible. I was unbreakable. I moved across the country and began new things, so unlimited was my potential. Then the echoes began. For a few years, they were like popcorn. Here. And there. Now it's an all-the-time worry. Again. Now, instead of just one medication, they've added another. And another. Now, since none of those work, I eat special food at certain times of day. I sleep a lot. My surgeon is waiting. There is no specialist in my part of the country. When they can schedule it, I'll get the call. I'll fly back. Scans and wires and hopefully he lets me have coffee. #OutOfMyHead

Tuesday, February 27, 2018

Got that tshirt

From a long-distant past, comes a tshirt I have to wear again. It's been hanging in my closet all my adult life, because as a woman, I keep important clothes. Every experience we go through, we get a tshirt. I have a tshirt from every Relay For Life, my Team Breakthrough race, every quarter theme at work, every radio station, and a tshirt for each important vacation. This tshirt is the experiential tshirt of seizures. Keeping a long story from getting too long, after my second brain surgery to stop the seizures several years ago, I hadn't had too much of a problem with them. Until a few years ago. Now what? A better doctor, more medicine, nutrition changes? Whatever it takes, I've never backed down from a challenge. That might be why my noggin is in trouble, but let's take one thing at a time. #outofmyhead #ketogenic #braintumor #seizures #seizuredisorder #josieblaine